Disclosure Dilemmas: Ethics of Genetic Prognosis after the 'Right to Know/Not to Know' Debate Christoph Rehmann-Sutter & Hansjakob Muller (eds.) Ashgate 2009
نویسنده
چکیده
This book aims to enrich current debates on the ethics of disclosing genetic information. It comprises a collection of essays written by contributors with a range of disciplinary backgrounds: bioethics, genetic medicine, medical anthropology, philosophy, law and sociology, to cite a few. By adopting an interdisciplinary approach, the volume advocates for a theoretical and methodological extension of the ethics of biomedicine.
منابع مشابه
The right not to know: an autonomy based approach.
The emerging international biomedical law tends to recognise the right not to know one's genetic status. However, the basis and conditions for the exercise of this right remain unclear in domestic laws. In addition to this, such a right has been criticised at the theoretical level as being in contradiction with patient's autonomy, with doctors' duty to inform patients, and with solidarity with ...
متن کاملHIV and the right not to know.
It is a tenet of the prevailing ethic in medicine that competent adults have the 'right to know' information necessary to make informed decisions about their healthcare. Whether there is a 'right not to know' unwanted information is more hotly debated. When deciding whether or not to override a competent adult's desire not to know his/her HIV result, a desire to respect patient autonomy can be ...
متن کاملAn Investigation of Physicians’ Attitudes to Disclosure of Bad News to Patients in the City of Qom
Background and Objectives: Most physicians believe that telling lies and withholding the truth is not permissible. However, it appears that holding the phenomenon telling the truth to be absolute or unconditional is not acceptable either. This study was conducted to examine Qom City physicians’ attitudes with regard to revealing the influential news to patients. Methods: This was a des...
متن کاملThe challenge of truth telling across cultures: a case study
Accompanied with various opinions across cultures, truth telling is a major debate in bioethics. Many studies have focused on attitudes toward truth disclosure. We intend to review several relevant research studies, and discuss the issue through a clinical case consultation. It seems that while "the right to know" is emphasized in bioethics, in some cultural contexts, health professionals fear ...
متن کاملLAW, ETHICS AND MEDICINE The right not to know: an autonomy based approach
The emerging international biomedical law tends to recognise the right not to know one’s genetic status. However, the basis and conditions for the exercise of this right remain unclear in domestic laws. In addition to this, such a right has been criticised at the theoretical level as being in contradiction with patient’s autonomy, with doctors’ duty to inform patients, and with solidarity with ...
متن کامل